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My story: jack, living with epilepsy

Listen to Jack detail his experience living with epilepsy while seeking treatment.

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Transcript

00:00
Getting diagnosed in a timely and accurate manner is everything, is everything. [INSPIRATIONAL MUSIC]
00:10
In Afghanistan in 2010, 29 of us went to reinforce other Marines
00:16
in their combat operations. And we came back, and four of us started having seizures.
00:23
I was diagnosed in 2011. And I was diagnosed with generalized seizure disorder.
00:30
Many, many treatments later, I was correctly diagnosed, in 2022, with refractory post-traumatic
00:39
epilepsy. Without receiving that for 12 years, there was a tremendous amount of time, treatment plans,
00:45
medications that I went through. A seizure is like a lightning bolt hitting a tree.
00:53
So a timely and accurate diagnosis basically gets you the opportunity for that tree
01:00
to continue to grow at a faster rate than it is getting struck by lightning. Once I was diagnosed in 2022 with that refractory
01:09
drug-resistant post-traumatic epilepsy, it was a relief to me. I was like, boom.
01:16
Like, we got it. We know what we're fighting now. This whole medical situation, it's
01:23
gotten me to the highest highs and the lowest lows. And I'm still here.
01:30
And I'm still in the fight. And I'm never going to get out of it. But I want to be here.
01:36
I'm such a huge advocate. And I'm so set on making my impact within funding,
01:44
within research. The most amazing part of epilepsy, of PTE,
01:51
is the opportunity to serve again. [AUDIO LOGO]

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