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My Story: Being an Advocate with Psoriasis

Medically reviewed in December 2021

Ayesha, a psoriasis patient and healthcare advocate, helps others with tips learned from her healthcare journey.

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Transcript

00:00
[MUSIC PLAYING] It's very tough on me, sometimes, as a mother with psoriasis.
00:06
I often get choked up because I know that it's something that can be hereditary.
00:13
[MUSIC PLAYING]
00:20
I became a psoriasis advocate, first and foremost, because I wanted to be able to be part of a community that
00:28
just helped others who were also experiencing the challenges that I was experiencing. It became extremely important for me
00:36
to be able to do that, as a support to myself, and to others. The trends that I've noticed, as a woman of color,
00:43
and what I've seen for people of color who are trying to manage psoriasis, is first, we're often misdiagnosed.
00:51
Sometimes, people think they have impetigo or even ringworm, and then just trying to find the right provider can
00:58
be very difficult and the right treatments for us because there's no one size fits all. The tips that I would give to others finding a healthcare
01:08
provider, as a person of color, it's the first, find someone that hears you. You want to be heard, and secondly, you
01:16
want to find someone that has a high degree of cultural competency. So that they are understanding and
01:22
empathetic of the different challenges that you might face that they might not have experienced or may not understand.
01:30
It is extremely important to be an advocate for yourself in your health care because you are
01:37
the person that is living and breathing inside of yourself. You know what you're experiencing
01:43
because it can really make the difference in the type of treatment that you get and the severity of the disease and its impact on your body.
01:52
I find joy in life by waking up. Literally, by waking up every day, I have gratitude because I have two amazing children that I
02:03
live for. And I live for myself. I live for my happiness, and even though I have this disease, it has not stopped me
02:11
from elevating in my life. [MUSIC PLAYING]

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