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Patient Perspectives: Real Talk For Infusion - And What To Expect

Treatment for multiple sclerosis has evolved greatly. Here is what to expect during an infusion.

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Transcript

00:00
We've come a long way in the way that we are able to treat and manage MS. [MUSIC PLAYING]
00:10
If we just take a step back and talk about what MS is kind of in a clinical sense, we know that it's an autoimmune disease that affects
00:18
the central nervous system. And it causes many of those symptoms that we discussed like difficulty using your hands or difficulty with sensation or difficulty
00:26
walking. And each person's journey is different. But what we do know is that we manage
00:32
MS like we manage many other conditions, and many of the treatments that we have allow people to have as much function as possible.
00:40
So let's talk a little bit about, what is an infusion therapy? And those are medications where someone would likely
00:47
go to a center whether it's in their doctor's office or some other infusion center where these medications are given. And they would receive a medication in the IV.
00:56
And depending on the medication, they have different frequencies. There are some medications that are every 28 days, some that
01:02
are every six months, and some that are several days once a year. So depending on what treatment that patient and their doctor
01:09
come up with will depend on the frequency and how often they have to receive that therapy. My role is to not only do the infusion,
01:17
you know, start the IV lines and all that stuff, but is more about making them feel comfortable and understanding what is going to be
01:24
the result of this infusion. Are there side effects? There can be. But our goal is to minimize those in a way
01:31
that they are comfortable. You know, it's more about having that human relationship with them when they're starting these infusions.
01:39
Because if they are comfortable and let's say [INAUDIBLE],, the infusion actually does go better because they are more
01:46
accepting. And I truly believe in positivity of the mind. And a lot of times, if they go in there with that positive mindset, they actually feel great.
01:56
The importance of the infusion nurse-- and that's what I hear about so much from my patients--
02:05
is their concerns, their worries. Especially for the newly diagnosed, a lot of people have so many questions.
02:13
And the first thing people respond with is talk with your infusion nurse. They're incredible people.
02:20
And what I really like to see is when I watch these communities get together. And everybody on one infusion start supporting each other,
02:28
and everybody on another infusion starts supporting each other and starts showing the benefits.
02:35
And that's-- that's been spreading. One thing that I notice a lot with my clients who do any type of infusion therapy
02:42
is that they express extra feelings of fatigue leading up to the infusion.
02:48
And they can always tell when they're ready for their next infusion. So during that time, a lot of what I do as a physical therapist is help them come up
02:57
with energy conservation strategies, ways that they can manage their energy so that they don't feel as fatigued leading up
03:05
to their next infusion. PT can help for sure leading up to infusions but even just year-round to help manage your MS in the most
03:14
effective way. Absolutely. If I can get year-round PT prescriptions for all of my patients, everybody's life
03:20
would be much better. That's the goal. Yeah, it's so essential, you know, to everyday function
03:27
and to keeping people, you know, healthy and, you know, attempting to live their best selves. [MUSIC PLAYING]

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