My story: living with multiple sclerosis

Updated on October 25, 2024.

Though some lifestyle concessions are needed, it is possible to remain positive while living with MS.

close transcript modal

Transcript

00:00
Living with multiple sclerosis has really made me value the energy that I have
00:07
and choose very carefully what I give that energy to. [MUSIC PLAYING]
00:14
Exercising with MS has been a little bit of a challenge because heat really does cause me to have flares.
00:21
Something I've discovered that I absolutely love is deep water running, where your head is out of the water
00:28
but the rest of you is submerged in the deep end. And it's a great cardio option, while also staying cool.
00:34
Presently, we do a lot of just nice walking with our dogs and kids, and that is what I will take for now.
00:43
With MS, a few diet modifications that have been helpful is just paying a little bit more attention to anti-inflammatory eating,
00:52
so trying to eliminate things like sugars and caffeine and starches from my diet. I am not very good at it, but I'm aware of it.
01:00
[LAUGHS] Motherhood can be a challenge with MS, but I will say that it's really helped
01:07
spark a deep level of empathy and care within my children from a very young age.
01:13
That's not to say that they shoulder a lot of the burden but that they're very understanding and sensitive to how I'm doing and how to be caring in that moment
01:21
if I'm struggling. And they like to bring me water or snacks or whatever I need to just continue to lay flat and relax
01:29
and recharge. My MS diagnosis has impacted my art in many different ways,
01:36
including the medium that I choose to use and a few of the techniques that I've developed to help myself.
01:42
And that's what really shifted my lifestyle was my diagnosis. I do still have a part-time job that I work in cultural arts
01:53
within my city, but again, it's within that sphere of things that I really love, and so I'm really happy about it.
01:59
How I remain so positive with MS-- I'd say I really take the light and the dark in stride.
02:06
I don't have fantastic days every day, but I'm really thankful for the days when they're good, even,
02:13
and relaxed. I think just taking it all in stride is really important. [MUSIC PLAYING]

More On

The importance of healthcare providers of color for MS patients

video

The importance of healthcare providers of color for MS patients
Mia explains the importance of her relationship with her doctor.
8 things a neurologist wants you to know about multiple sclerosis

slideshow

8 things a neurologist wants you to know about multiple sclerosis
Bust the myths—and get the truth—about MS.
Christina Applegate says she wishes she had ‘paid attention’ to subtle signs of MS

video

Christina Applegate says she wishes she had ‘paid attention’ to subtle signs of MS
Last year, Applegate revealed she'd been diagnosed with multiple sclerosis.
The importance of early treatment for MS

video

The importance of early treatment for MS
Though different MS therapies work better for different people, research suggests one approach may be associated with better outcomes.