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What Does It Mean To Be a Self-Advocate with TD?

Being a self-advocate with tardive dyskinesia means communicating what you need and what you desire for treatment.

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Transcript

00:00
What does it mean to be a self-advocate? [MUSIC PLAYING]
00:07
Being a self-advocate means speaking up for yourself. I know that can be frightening or even sound intimidating,
00:14
but self-advocacy means, first of all, knowing your own legal rights and responsibilities.
00:21
And then you as an individual, what are your personal goals, what are your needs, and what are your strengths? And once you've assessed all of those,
00:28
self-advocacy means communicating what you need and what you desire. Self-advocacy is beneficial when it comes to your health care.
00:37
If you're sick, doctors can prescribe medications to help, but sometimes, those treatments can cause serious side effects.
00:44
Advocating for yourself involves engaging your doctors to help you understand, to make an informed decision
00:51
by weighing the benefits and the risks of any treatment. Tardive dyskinesia is also known as TD.
00:57
It is a serious side effect that can occur from a particular class of medications known as neuroleptic medications.
01:05
Neuroleptic medications are important medications that are used for both psychiatric conditions and, in certain cases, for severe nausea and vomiting.
01:14
Tardive dyskinesia happens with involuntary movements that largely involve the head, your eyes, your face, your jaw,
01:24
and your tongue. But it can also sometimes be seen in your arms and your legs and your chest. It is very common.
01:31
About half a million, or 500,000, people in the United States are estimated to have tardive dyskinesia.
01:37
What do these movements look like? These are involuntary movements, so that means they happen out of your control.
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It can be something like looking like your fingers are playing the piano, your tongue is thrusting,
01:49
your jaw is swinging, or your eyes are blinking rapidly. If any of these types of symptoms are occurring,
01:57
it is important that you contact your health care provider immediately. When you have symptoms of TD, this is where self-advocacy is essential.
02:06
You must advocate for yourself by, first of all, contacting your health care provider immediately and letting them know your concerns, your signs
02:14
and your symptoms, and asking for help. In addition, find trusted resources of medical information, and not only share that with yourself,
02:22
but also your family members and your loved ones. And last but not least, find a support group of others who can understand TD.
02:31
TD does not need to control your life. And the earlier that it is detected, the better.
02:37
Self-advocacy is an essential step to ensure that you continue to receive the best care possible
02:44
and support and treatment that you need. If you've been diagnosed with TD, it is essential that you use self-advocacy to speak
02:53
with your physician. There are now potential new treatments that are available for tardive dyskinesia,

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