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5 Helpful Resources for AMD Patients and Caregivers

5 Helpful Resources for AMD Patients and Caregivers

Five places to find information and support when living with age-related macular degeneration.

Age-related macular degeneration (AMD) is one of the leading causes of vision loss among elderly Americans. AMD causes central vision loss, where the center of a person’s vision becomes blurred and may also develop blank spots, while the outer edges of the vision remain clear. While AMD does not cause complete blindness, it can result in legal blindness.

If you or a loved one has been diagnosed with AMD, the following links may help you learn more about the disease and the resources available to assist people who are affected by AMD.

American Academy of Ophthalmology
The AAO has information on a wide variety of eye conditions, and is a great starting point if you are expanding your research on AMD. Videos and animations offer a detailed look at the anatomy of the eyes and simulate the vision loss caused by AMD. There is also an Ask an Ophthalmologist section, where you can browse previous answers or submit your own. The search tool can help you find eye-care providers in your area.

BrightFocus
Formerly known as the American Health Assistance Foundation (AHAF), BrightFocus is a nonprofit organization that funds scientific research in diseases that affect the brain and eyes—Alzheimer’s disease, glaucoma, and macular degeneration. Their website features pages of useful information for people impacted by AMD, including guidelines to help when talking to a healthcare provider and a page on financial aid for macular degeneration medications. If you need to find a provider, there is also the Find an Ophthalmologist search tool.

AMDF
The American Macular Degeneration Foundation (AMDF) is another nonprofit, dedicated to preventing, treating, and curing AMD. Their website is an excellent source of patient education information, with pages on the anatomy of the eye, treatments, nutrition, questions to ask a healthcare provider, and current research into AMD. There is also a care and services directory to help you find a healthcare provider.

Eyecare America
Healthcare can be expensive. If you are struggling to pay for an eye exam, Eyecare America is an award-winning program created by AAO that connects qualified patients with volunteer ophthalmologists to provide no-cost eye exams.

VisionAware
Central vision loss can make it difficult to perform everyday tasks—such as reading, driving, and preparing meals. VisionAware catalogs practical strategies, products, and services for maintaining independence while living with vision loss. You’ll find pages on everything from modifications to make to your kitchen and assistive technologies, to advice on talking to your employer about your vision loss and knowing your rights in the workplace.

Medically reviewed in October 2019.

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