Advertisement

5 Resources for Patients With Metastatic Breast Cancer

5 Resources for Patients With Metastatic Breast Cancer

Follow these links to finding support and information about living with MBC.

Learning as much as possible about metastatic breast cancer and your diagnosis is important, especially when making decisions about treatment. However, searching for information can sometimes be overwhelming. The sites below offer a starting point to learning more about MBC and understanding what questions you should be asking your healthcare provider. They also offer the opportunity to connect with both professionals and peers who can offer support and guidance.

Susan G. Komen
Susan G. Komen is one of the largest organizations dedicated to breast cancer, and one of the most recognizable. The organization’s website includes a number of resources and tools for patients with MBC. In addition to education materials, there are helplines for patients seeking everything from financial assistance to information on clinical trials.

SHARE
SHARE is a resource for anyone who is looking to connect with other patients who have MBC. It organizes monthly support groups for people living with MBC and caregivers, including a Spanish-language support group. Meetings are both over-the-phone and in-person. SHARE also organizes webinars, educational programs and an online MBC community.

Living Beyond Breast Cancer
Founded in 1991 by a radiation oncologist, Living Beyond Breast Cancer aims to help anyone impacted by breast cancer by providing reliable information, as well as a community for support. The LBBC website offers pages of information about many topics related to metastatic breast cancer (the brochure on managing stress and anxiety is recommended reading). They also offer support services over the phone and a number of in-person events, including conferences, panels with patients and healthcare experts, and fundraising events that include outdoor yoga and live music.

Metastatic Breast Cancer Network (mbcn)
MBCN is focused on patient advocacy and education for patients with MBC. The site features patient stories, information for the newly diagnosed, a clinical trials finder and listings for in-person support groups in many states.

The Metastatic Breast Cancer Project
The Metastatic Breast Cancer Project is a nonprofit research institute dedicated to accelerating cancer research, led by Broad Institute of MIT and Harvard. Patients can contribute tumor samples and medical records that will be used to better understand the disease and develop new treatments.

Medically reviewed in June 2018.

What You Need to Know About Having a Mastectomy
What You Need to Know About Having a Mastectomy
More than 100,000 women in the US have some type of mastectomy every year. That’s a lot, considering that around 230,000 American women are diagnosed ...
Read More
What is the connection between breast cancer and ovarian cancer?
Sharyn N. Lewin, MDSharyn N. Lewin, MD
We can link only 10 to 13 percent of ovarian cancers to hereditary causes. Talking with your doctor ...
More Answers
5 Workouts for Breast Cancer Survivors
5 Workouts for Breast Cancer Survivors5 Workouts for Breast Cancer Survivors5 Workouts for Breast Cancer Survivors5 Workouts for Breast Cancer Survivors
These gentle workouts can help breast cancer survivors combat some of the effects of treatment, including pain, fatigue, stress and weight gain.
Start Slideshow
How Important Is a Mammogram for Detecting Breast Cancer?
How Important Is a Mammogram for Detecting Breast Cancer?