How Important Is Patient Engagement for People with HIV?

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I've long believed that, whatever the health situation, the patient who is informed and engaged and empowered is going to live long and have better outcomes, that can't help but be the case, the more informed I am about mechanism of a the drug works, I think it works better on me if I can like visualize how it's working and that engagement, is not a single standard, everybody has a different level of certain engagements, not being in denial about your health, it's about recognizing the reality yes you can look at statistics and you can see what your condition has meant to other people who had it or to averages that understanding that for each individuals and you need to find your own path.

There's a very important book written in 1990 called Surviving AIDS, by an activist person with AIDS who was a real influence in my life, Michael Callen, and at the time, everything about the epidemic was a death sentence. Any time it was referenced in the media it was inevitably fatal a terminal decease, a dread disease, no cure, no survivors a 100% fatal.

That was happening again and again and again and again because that's all most people knew about. So someone nearly diagnosed when they're reading about that going to read and I believe that just as when we get a feeling in the pit of our stomach or we get cold feet or the hair in the back of our neck rises, that is a psychological reaction to some kind of intellectual stimulus and the immune system must work to some extent in a similar way.

if it is assaulted with death sentence messages it simply isn't going to try as hard on the other hand if someone looks to people who are surviving who are leading vital lives for managing a very challenging life long health condition or life threatening condition those examples are powerful and I think inspire people to take more control in their life and be more confident in the healthcare decisions that they make.