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How can I make sure I'm not isolating myself because of my disorder?

Here are some tips you can use to avoid isolation:
  • Seek expert medical care so your symptoms can be better controlled, which will mean greater social freedom. Consulting a properly trained doctor with experience treating dystonia can make a significant difference in managing yoiur symptoms, pain, and fatigue.
  • When you feel isolated, tell family and friends what you are feeling. Talk to your doctor if you feel anxious or depressed.
  • Keep a journal of symptoms and feelings to help identify patterns that make a “good” or “bad” day. This will allow you to be better prepared for either occurrence.
  • Ask a family member or friend to help you explore new opportunities or try new activities.
  • Identify specific obstacles that may be preventing you from feeling connected or participating in an activity. Explore ways around those impediments.
  • Do not talk yourself out of opportunities. When you choose to opt out of an activity, imagine the outcome you are trying to avoid. Are you anticipating a catastrophe, a frustration or an inconvenience? A catastrophe may very well be a situation to avoid, whereas a frustration may be something you can handle with a little planning. An inconvenience may be something you can deal with relatively easily.
  • If getting from place to place is a challenge, find out if public transit is an option. Is there a local organization that can help you access transportation? Can you enlist the help of family or friends?

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.