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What do I need to know about caring for someone with myotonic dystrophy?

You should know how to manage the symptoms of myotonic dystrophy to maintain the best quality of life possible. A good place to start is by finding a support group for people living with myotonic dystrophy and their caregivers. Group members can help you better understand the psychological, emotional, and physical challenges faced by those with myotonic dystrophy.
Your doctor may be able to help you find a support group in your area. You can also ask your local health department, check your local library, or look online. Organizations such as the Muscular Dystrophy Association or the Myotonic Dystrophy Foundation have resources for caregivers.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.