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What should I know to care for someone with Becker muscular dystrophy?

Duchenne and Becker muscular dystrophy are names for the same disorder caused by genetic mutations in the DMD gene.  When caring for someone with this disorder, it's important to provide both physical and emotional support.  LONG ANSWER: Duchenne and Becker muscular dystrophy are names for the same disorder caused by genetic mutations in the DMD gene. When caring for someone with this disorder, it's important to remember that the disease impacts people both physically and emotionally. Muscle weakness and other symptoms may interfere with their ability to get around and to perform daily tasks.  For children with the disease, it may affect their ability to participate in sports and other physical activities. Assistance should be provided but individuals with this disorder should also be encouraged to be as physically independent as possible.  It may be beneficial to eat a healthy diet full of fiber and plenty of water, and manage calorie intake as directed by a doctor. Also make sure you provide medication or therapy according to any medical advice from their doctors. Because Duchenne or Becker muscular dystrophy can have such an impact on daily life, people with the disease may also have a hard time emotionally coping with the challenge of living with the disease. Make sure you're there to provide emotional support, and help them find other resources, like support groups or counselors, since that may be beneficial.


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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.