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What should I know to care for someone with congenital myotonic dystrophy?

When caring for someone with congenital myotonic dystrophy, it's important to provide all the support and care that you can. Muscle weakness and other symptoms may interfere with a child's ability to walk and participate in normal childhood activities. It's important to help them with necessary tasks but encourage them to be as physically active and independent as possible. Make sure your child is participating in physical or occupational therapy as directed by your doctor. Other specialists, such as speech therapists and special education professionals, may be able to help your child develop to their fullest potential. Congenital myotonic dystrophy can have a tremendous impact on daily life, so make sure you support you child physically, intellectually, and emotionally.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.