What should I know to care for someone with limb-girdle muscular dystrophy?

When caring for someone with limb-girdle muscular dystrophy, it's important to remember that the disease impacts people both physically and emotionally. Muscle weakness and other symptoms may interfere with their ability to get around and to perform daily tasks, so help them with necessary tasks but encourage them to be as physically independent as possible. Reinforce the importance of a healthy diet in combination with any medical advice from their doctors. Because limb-girdle muscular dystrophy can have a significant impact on daily life, people with the disease may also have a hard time emotionally coping with the challenges presented by the disease. Make sure you're there to provide emotional support, and help them find other resources, like support groups or counselors, that may be beneficial.

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