Is Surgery for Crohn's or Colitis Right for You?

Is Surgery for Crohn's or Colitis Right for You?

Find out when it might be a good option.

You've tried just about everything to put inflammatory bowel disease (IBD) into remission, including various medications and certain diet and lifestyle changes. But what happens when those don't work and you're still living in pain and discomfort from ulcerative colitis or Crohn's disease? Maybe it's time to think about surgery as the best way to reach long-term relief from your symptoms.

Many people with ulcerative colitis or Crohn's consider surgery at some point. Here are instances when surgery might be a good option to treat IBD:

  • Your doctor says your inflammation hasn't improved, has gotten worse or has developed into cancer
  • You're experiencing complications from the disease (abscesses, fistulas, bowel obstructions, etc.)
  • Medication hasn't worked well for you, including biologics, immunologics and/or corticosteroids

Different Types of IBD Surgery 
The reasons for surgery, the types of procedures and the results are different for both diseases. "While an operation for ulcerative colitis gives you a cure for the disease and its symptoms—since you're removing the large intestine, and thus removing the inflammation—surgery for Crohn's can be more difficult and isn't curative because you're removing certain areas of inflammation along the gastrointestinal tract," says Marc Sonenshine, MD, a gastroenterologist at Atlanta Gastroenterology Associates in Atlanta, Georgia. And since Crohn's essentially flares up in different areas, you're often at a higher risk of having a second surgery if you needed the first one, says Dr. Sonenshine.

You may be eligible for a few types of IBD surgery and should weigh the pros and cons of each. Before undergoing ulcerative colitis surgery, for example, you and your doctor will have to decide on one of two procedures that will remove your large intestine but still allow you to get rid of waste. In a newer type of surgery, known as a restorative proctocolectomy, your doctor essentially creates a new pathway and internal storage pouch from your small intestine that allows you to pass waste like normal. But there are some drawbacks to creating that internal storage pouch, like inflammation, more frequent bowel movements, a longer recovery time post-surgery, possible revision surgery due to leakage and even pouch failure. The traditional procedure, called a proctocolectomy with ileostomy, will mean wearing an odorless external pouch over a small opening in your abdomen in order to collect stool. You'll have to empty this pouch several times a day, but it's often your best option when ulcerative colitis is severe.

A proctocolectomy with ileostomy may be best for some Crohn's sufferers, too. But because Crohn's occurs in patches of inflammation along the digestive tract and isn't limited to the large intestine, other surgical procedures may be necessary. Keep in mind that only after talking with your doctor will you know which surgery is best for you.

If the Time Is Right
"I know how hard it is for people who are facing surgery for IBD," says Dr. Sonenshine. "In many ways it's a decision that affects entire families, and leads to a lot of extra stress and quality of life issues that can be tough for many sufferers." But consider this: Even though opting for IBD surgery is not an easy choice, the important thing to remember is that it may be the best way to finally get your symptoms under control. If you think you might be ready for surgery, talk with your doctor about all yours risks and benefits.

Medically reviewed in October 2018.

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