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Should I tell the school about my child's Fabry disease?

If your child suffers from Fabry disease, it's a good idea to tell the school. This isn't because the disease is contagious; in fact, it's inherited. Rather, informing the school will ensure that teachers and other staff are aware of the risk for overheating, problems with digestion, and burning arm and leg pain.  Additionally, depending on the child's infusion schedule, it is important for the school to understand the reason for their every other week absences for enzyme replacement therapy.  Because Fairy disease is a rare disease, you should educate your child's teachers about its symptoms and the steps that can be taken to minimize them. The school staff can help ensure that your child drinks enough water, avoids strenuous exercise and overheating, and takes prescribed medication or vitamins as scheduled.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.