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What is the prognosis for someone with neurofibromatosis type 1 (NF1)?

Neurofibromatosis type 1 (NF1) is a progressive disorder, which means most symptoms will worsen over time, although a small number of people may have symptoms that remain constant. It isn't possible to predict the course of an individual's disorder. In general, most people with NF1 will develop mild to moderate symptoms. Most people with NF1 will have a normal life expectancy. Neurofibromas on or under the skin can increase with age and cause cosmetic and psychological issues.

This answer is based on source information from the National Institute of Neurological Disorders and Stroke.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.