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What is the prognosis for Rett syndrome?

Despite the difficulties with symptoms, most individuals with Rett syndrome continue to live well into middle age and beyond. Because the disorder is rare, very little is known about a long-term prognosis and life expectancy. While it is estimated that there are women in their 40s and 50s with the disorder, not enough women have been studied to make reliable estimates about life expectancy beyond the age of 40.

This answer is based on source information from the National Institute of Neurological Disorders and Stroke.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.