What is the prognosis for Rett syndrome?

Dr. Jeanne Morrison, PhD
Family Practitioner

Despite the difficulties with symptoms, most individuals with Rett syndrome continue to live well into middle age and beyond. Because the disorder is rare, very little is known about a long-term prognosis and life expectancy. While it is estimated that there are women in their 40s and 50s with the disorder, not enough women have been studied to make reliable estimates about life expectancy beyond the age of 40.

This answer is based on source information from the National Institute of Neurological Disorders and Stroke.

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