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How do I manage my Fabry disease on a daily basis?

On a daily basis, there are several things you can do to manage the symptoms of Fairy disease. First, take medications to decrease hand/foot pain, decrease stroke risk, and help kidney function as prescribed by your doctor.  Depending on your symptoms, you may also wish to avoid extreme heat/cold that could increase hand and foot pain.  It is particularly important to have regular enzyme replacement therapy to treat the underlying cause of Fabry disease.  In order to increase quality of life, seek counseling for depression, anxiety, and panic attacks as needed.  Because Fairy disease can damage your heart and kidneys, you should avoid activities that might put unnecessary stress on these organs, like strenuous exercise, smoking, eating a high-sodium diet, and anything that exposes you to mental strain or excessive heat.


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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.