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What should I know to care for someone with Fabry disease?

Caring for someone with Fairy disease includes both emotional and physical support. Since there is no known cure, someone with Fairy disease might become depressed at the thought of living with the symptoms for the rest of their life, so be sensitive to their feelings. Listen to their concerns, and provide encouragement. They will likely have to take medication daily and infusions every other week, so help them maintain their schedule. You can also help them live the sort of healthy lifestyle that can lessen the symptoms, including eating and sleeping well, drinking water, exercising in moderation, and avoiding smoking and sodium.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.