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The 4 Best Ways to Get Help for Hereditary Angioedema

The 4 Best Ways to Get Help for Hereditary Angioedema

Being diagnosed with hereditary angioedema can be scary, but you don't have to go it alone.

If you’re living with hereditary angioedema, a condition characterized by episodes of severe swelling in the limbs, face, airways and digestive tract, you know an attack can be extremely uncomfortable—and oftentimes, scary.

Get the expert-backed information you need to take control of your condition, as well as the latest research and treatments available for HAE.

US Hereditary Angioedema Association – The US HAEA is a patient advocacy organization that provides patients, their caregivers and healthcare providers the most up-to-date news, research and treatment options for hereditary angioedema. They also have a major focus on condition awareness and education.

National Institutes of Health Genetics Home Reference – Hereditary angioedema is an inherited genetic disorder. Learn more about the genetic changes that result in HAE, inheritance patterns and more.

Medline Plus – Medline Plus provides a comprehensive overview of hereditary angioedema, so you can better understand risk factors and triggers, symptoms and condition management. Plus, it offers other resources for more information on HAE.

All About HAE Support Group – Despite your family and friends’ best efforts, it may feel like they can’t truly understand your condition. Check out this Facebook support group, hosted by All About HAE, to connect with other people living with hereditary angioedema.

Medically reviewed in January 2020.

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