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What can I do to successfully live with my dystonia?

Dystonia can have a profound impact on a person's life. Learning to live with the disorder can be an adjustment. Many people with dystonia describe the process of diagnosis and everyday coping as riding a roller coaster with dramatic ups and downs: there are setbacks and celebrations, challenges and victories.

Here are some strategies to live well with dystonia:
  • Seek out the best medical care.
  • Educate yourself about dystonia and treatment options.
  • Develop a multi-layered support system, including local support groups, online resources, friends and family.
  • Seek out the services of mental health professionals, if needed.
  • Investigate complementary therapies.
  • Get active within the dystonia community.

Continue Learning about Dystonia

Do doctors still perform lesioning brain surgeries on people with dystonia?
Dystonia Medical Research Foundation (DMRF)Dystonia Medical Research Foundation (DMRF)
Previously, surgically creating permanent lesions in the brain was the only available treatment for ...
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What are different types of focal dystonias?
Dystonia Medical Research Foundation (DMRF)Dystonia Medical Research Foundation (DMRF)
Focal dystonias affect a specific group of muscles or body part. The following are different types o...
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How do I prepare for my doctor's appointment to discuss my dystonia?
Honor Society of Nursing (STTI)Honor Society of Nursing (STTI)
If you are going to your doctor to discuss your dystonia symptoms, it is important to be prepared. K...
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Does dystonia get progressively worse over time?
Honor Society of Nursing (STTI)Honor Society of Nursing (STTI)
Within five years after symptoms begin, dystonia stabilizes for most people. Symptoms do not get wor...
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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.