Advertisement

Why should I join an amyotrophic lateral sclerosis (ALS) support group?

You should join an amyotrophic lateral sclerosis (ALS) support group for support, advice and discussion. It can be informative and comforting to speak with people who have the same condition as you.
Melanie Taylor, MD
Neurology
You should join an amyotrophic lateral sclerosis (ALS) support group because sometimes people with ALS and their caregivers will feel alone. It’s important for you to realize that what you're feeling is normal. You're not in this alone. There are others out there who have gone through the exact same thing, so talking to peer mentors and other caregivers who have gone through the same thing can really help with the overall quality of life of a person with ALS and that of their caregiver. Hearing from someone else who has lived through the disease provides a different kind of understanding. It’s more meaningful to hear from somebody who says they've walked this mile in your shoes and they understand.

Trinity Health is a Catholic health care organization that acts in accordance with the Catholic tradition and does not condone or support all practices covered in this site. In case of emergency call 911. This site is educational and not a substitute for professional medical advice, always seek the advice of a qualified healthcare provider.

Continue Learning about Amyotrophic Lateral Sclerosis (ALS)

Know Your Risk: ALS in Hawaii
Know Your Risk: ALS in Hawaii
A few years ago, you may have been captivated by viral videos, Facebook callouts and images of local celebrities, like Jake Shimabukuro or Lee Ann Won...
Read More
What are the symptoms of amyotrophic lateral sclerosis (ALS)?
Sigma NursingSigma Nursing
Early symptoms of amyotrophic lateral sclerosis (ALS) involve weaknesses of peripheral motor control...
More Answers
Is amyotrophic lateral sclerosis serious?
Angela Mark, MDAngela Mark, MD
Amyotrophic lateral sclerosis (ALS) is also known as Lou Gehrig's disease. It is very serious as it ...
More Answers
What is the prognosis for ALS (Lou Gehrig's disease)?
Discovery HealthDiscovery Health
Generally, once a person is diagnosed with ALS, the average survival time is three to five years. I...
More Answers

Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.