Why should I join an amyotrophic lateral sclerosis (ALS) support group?

You should join an amyotrophic lateral sclerosis (ALS) support group for support, advice and discussion. It can be informative and comforting to speak with people who have the same condition as you.
Melanie Taylor, MD
You should join an amyotrophic lateral sclerosis (ALS) support group because sometimes people with ALS and their caregivers will feel alone. It’s important for you to realize that what you're feeling is normal. You're not in this alone. There are others out there who have gone through the exact same thing, so talking to peer mentors and other caregivers who have gone through the same thing can really help with the overall quality of life of a person with ALS and that of their caregiver. Hearing from someone else who has lived through the disease provides a different kind of understanding. It’s more meaningful to hear from somebody who says they've walked this mile in your shoes and they understand.

Trinity Health is a Catholic health care organization that acts in accordance with the Catholic tradition and does not condone or support all practices covered in this site. In case of emergency call 911. This site is educational and not a substitute for professional medical advice, always seek the advice of a qualified healthcare provider.

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Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.