Advertisement

What should I discuss with my doctor if I have been diagnosed with ALS?

If you have been diagnosed with amyotrophic lateral sclerosis (ALS) you should discuss with your doctor how this illness manifests and what this will mean for your daily life going forward. ALS is a grave diagnosis, and no cure has yet been found. You may learn together with your doctor what resources are available to facilitate living with the limitations imposed by this disease.

If you have been diagnosed with amyotrophic lateral sclerosis (ALS), you should discuss the following with your doctor:

  • What further symptoms will occur as the disease progresses? ALS was thought to just affect the muscles, just cause muscle weakness and not really have any other symptoms, but it is known now that there are other aspects. As the disease progresses, you should have conversations with your doctor long before further symptoms even occur so you will not be surprised by new symptoms.
  • What are the different domains that are going to be impacted by this disease, such as communication, nutrition and respiration?
  • How will ALS affect emotion, behavior, and relationships?
  • Discuss your concerns about whether you will be comfortable, if the disease is going to be painful, how you feel about things that can prolong life or not, and what a meaningful quality of life is for you.

Continue Learning about Amyotrophic Lateral Sclerosis (ALS)

Know Your Risk: ALS in Hawaii
Know Your Risk: ALS in Hawaii
A few years ago, you may have been captivated by viral videos, Facebook callouts and images of local celebrities, like Jake Shimabukuro or Lee Ann Won...
Read More
Why does my doctor need to assess my home environment if I have ALS?
Dr. Melanie G. Taylor, MDDr. Melanie G. Taylor, MD
If you have amyotrophic lateral sclerosis (ALS) your doctor needs to assess your home environment be...
More Answers
Why should I join an amyotrophic lateral sclerosis (ALS) support group?
Dr. Melanie G. Taylor, MDDr. Melanie G. Taylor, MD
You should join an amyotrophic lateral sclerosis (ALS) support group because sometimes people with A...
More Answers
What does the word amyotrophic mean?
Discovery HealthDiscovery Health
The word amyotrophic, when broken down, means muscle nourishment-with "myo" meaning muscle and "trop...
More Answers

Important: This content reflects information from various individuals and organizations and may offer alternative or opposing points of view. It should not be used for medical advice, diagnosis or treatment. As always, you should consult with your healthcare provider about your specific health needs.