What is the treatment for incontinentia pigmenti (IP)?

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  1. Natural Standard, The Authority on Integrative Medicine
     

    General: There is no treatment for incontinentia pigmenti (IP). Instead, treatment aims to manage symptoms and prevent complications.

    Dental care: Patients with IP require regular dental care, including brushing teeth after meals or at least twice daily. Patients with IP should have regular follow-up visits with a dentist. Orthodontic treatment may be recommended to straighten teeth if they are not aligned properly.

    Eye care: Vision loss may be improved with corrective lenses, drugs, or even surgery in severe cases. Patients should be seen by an ophthalmologist as soon as possible following birth, monthly until three to four months of age, every three months until one year of age, twice yearly until three years of age, and yearly thereafter.

    Neurological: Patients who have seizures, muscle spasms, or paralysis may be treated with drugs or medical devices. If neurological symptoms such as seizures are present, patients with IP should have regular follow-up visits with a neurologist.

    Skin care: While skin abnormalities are usually the first apparent symptom of IP, they tend to fade by adolescence or adulthood. Patients may choose to use makeup to hide the abnormal coloration.

    You should read product labels, and discuss all therapies with a qualified healthcare provider. Natural Standard information does not constitute medical advice, diagnosis, or treatment.

    General: There is no treatment for incontinentia pigmenti (IP). Instead, treatment aims to manage symptoms and prevent complications. Dental care: Patients with IP require regular dental care, including brushing teeth after meals or at least twice... More
  2. Riverside Center for Neurosciences
     

    The skin abnormalities of IP usually disappear by adolescence or adulthood without treatment. Diminished vision may be treated with corrective lenses, medication, or, in severe cases, surgery. A specialist may treat dental problems. Neurological symptoms such as seizures, muscle spasms, and mild paralysis may be controlled with medication and/or medical devices under the advice of a neurologist.

    This answer is based on source information from the National Institute of Neurological Disorders and Stroke.

    More Related Answers from Riverside Center for Neurosciences
    The skin abnormalities of IP usually disappear by adolescence or adulthood without treatment. Diminished vision may be treated with corrective lenses, medication, or, in severe cases, surgery. A specialist may treat dental problems. Neurological... More