How will Marfan syndrome affect my daily life?

Marfan syndrome (a condition that affects the body’s connective tissue) may affect your daily life in a variety of ways.

Advances in medical care are helping people with Marfan syndrome lead longer and more enjoyable lives. Early diagnosis allows treatment to begin sooner. Your health care provider may recommend certain guidelines for daily living. Talk to your health care provider about what lifestyle changes can best help you.

For the most part, people with Marfan syndrome can lead a normal lifestyle. Most people with Marfan’s can do some type of physical and/or recreational activity. It is recommended that people with Marfan’s should avoid activities or jobs that require physically strenuous activity. You should not lift heavy weights if you have Marfan’s. Contact and competitive sports such as football and basketball should be avoided.

There are no special dietary restrictions for people with Marfan syndrome. It is recommended that you eat a well-balanced diet low in fat and cholesterol.

Having Marfan syndrome does not mean you cannot live a long and enjoyable life. It is recommended that you receive routine medical care and follow-ups. It is important that you seek care from a doctor who has experience in treating Marfan syndrome. It is also recommended that you have routine eye exams, dental care, cardiovascular care and skeletal exams. Your health care provider can help you determine the frequency of your visits.