We all understand how difficult it is for patients and their loved ones to wait for an organ. The waiting times are long, and waiting may be stressful, but the best coping strategy is for patients to focus on maintaining their health. They can also reach out to support networks, ask for outside professional help and join support groups.
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Waiting for a suitable donor organ to become available may take one week to many months. Unfortunately, the latter is more often the case. This waiting time has been described by many transplant recipients and their families as the most difficult part of the transplant process. Fear and anxiety are normal reactions during this period of uncertainty.
Because this can be a frustrating and difficult time, we urge candidates and their families to join and regularly attend support group sessions. Your social worker and transplant coordinator will provide information on these opportunities.