Talking to other parents in a similar situation can help immensely. Your doctor, hospital, or school may be able to help you meet other families who are dealing with a chronic illness. You can check online websites for children and their families who are struggling with the same illness you are.
Local networking can lead you to support groups that can help your child, your other kids, and you cope better. Many parents will tell you that it’s essential to take things one day at a time and to stay focused on the present rather than melting down about the future. It will also help your mental state if you begin to tackle your first mission: getting the equivalent of a PhD in your child’s condition. Immerse yourself in information from responsible sources. Your growing knowledge will make you feel empowered, and that will help you regain a small but precious sense of control. You’ll feel proactive, and you’ll be able to spot potential issues.
From The Smart Parent's Guide: Getting Your Kids Through Checkups, Illnesses, and Accidents by Jennifer Trachtenberg.
Find out more about this book:The Smart Parent's Guide: Getting Your Kids Through Checkups, Illnesses, and Accidents